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Post by VanWoman84 on Jun 8, 2021 10:46:52 GMT
Lika mentioned this in the news thread, but it's now a few pages back and it's too important for everybody. There was a GP just on LBC saying it's everything from your records up for grabs, apart from (allegedly) names and addresses. I am trying to opt out, have emailed but haven't as yet had a reply.
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Post by Deleted on Jun 8, 2021 10:55:28 GMT
Lika mentioned this in the news thread, but it's now a few pages back and it's too important for everybody. There was a GP just on LBC saying it's everything from your records up for grabs, apart from (allegedly) names and addresses. I am trying to opt out, have emailed but haven't as yet had a reply. I've been pondering on this. I'm wondering if financial compensation will be due to individuals when the inevitable data breach occurs.
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Post by Deleted on Jun 8, 2021 10:59:36 GMT
Lika mentioned this in the news thread, but it's now a few pages back and it's too important for everybody. There was a GP just on LBC saying it's everything from your records up for grabs, apart from (allegedly) names and addresses. I am trying to opt out, have emailed but haven't as yet had a reply. I've been pondering on this. I'm wondering if financial compensation will be due to individuals when the inevitable data breach occurs. My bias is that the neutralisation of the NHS means I will be paid more fairly. So from a selfish perspective Id prefer an end to the NHS.
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Post by VanWoman84 on Jun 8, 2021 11:17:48 GMT
A Dr on LBC has just said the psdeumised data can be reverse engineered to reidentify patients using data known to be related to an individual. Unfortunately if you don't opt out, at this stage a psdeninm won't save your identity from being shared, by this route. All the same, opting out is all we have. You can do this online here www.nhs.uk/your-nhs-data-matters/manage-your-choice/I just did it, and was told my choice has been saved by text message.
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Post by Deleted on Jun 8, 2021 11:36:36 GMT
A Dr on LBC has just said the psdeumised data can be reverse engineered to reidentify patients using data known to be related to an individual. Unfortunately if you don't opt out, at this stage a psdeninm won't save your identity from being shared, by this route. All the same, opting out is all we have. You can do this online here www.nhs.uk/your-nhs-data-matters/manage-your-choice/I just did it, and was told my choice has been saved by text message. So a gp who is essentially a private practitioner who's services are commissioned through NHS funding says its not OK...... What's his bias? Most people I know are expected to share sensitive personal information and details of their healthcare with Dr's receptionists who are not medically trained nor registered with any professional body and are privately employed by the GP practice which is operated as a business. What's the difference?
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Post by VanWoman84 on Jun 8, 2021 11:40:28 GMT
The difference is I don't expect the receptionist to download my medical records onto a CD and leave it on a bus, or sell the whole practice's records to some private company who are then at liberty to sell it to whoever will pay for it.
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Post by VanWoman84 on Jun 8, 2021 11:52:29 GMT
Breaking news! The deadline for this data grab has been moved to 1 September.
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Post by Deleted on Jun 8, 2021 12:02:07 GMT
Breaking news! The deadline for this data grab has been moved to 1 September. The gvmt disputes this deadline
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Post by Deleted on Jun 8, 2021 12:05:02 GMT
The difference is I don't expect the receptionist to download my medical records onto a CD and leave it on a bus, or sell the whole practice's records to some private company who are then at liberty to sell it to whoever will pay for it. Thanks for engaging. Theoretically speaking what recompense do you have if the clerk chooses to chat about your personal healthcare issues with family or friends and it breaks out into your locally community? Cos methods such as these have been used to suppress, oppress and control people for centuries yet we have come a long way in the last few decades... Your medically accountable professional who is a registered practitioner is going to treat you and your information differently to a clerk. Your pseudonymised data is much safer with a policed company than it is with a clerk
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Post by Deleted on Jun 8, 2021 12:16:51 GMT
The difference is I don't expect the receptionist to download my medical records onto a CD and leave it on a bus, or sell the whole practice's records to some private company who are then at liberty to sell it to whoever will pay for it. Thanks for engaging. Theoretically speaking what recompense do you have if the clerk chooses to chat about your personal healthcare issues with family or friends and it breaks out into your locally community? Cos methods such as these have been used to suppress, oppress and control people for centuries yet we have come a long way in the last few decades... Your medically accountable professional who is a registered practitioner is going to treat you and your information differently to a clerk. Your pseudonymised data is much safer with a policed company than it is with a clerk Here my bias is about the furthering of healthcare outcomes through the analysis of statistical data which as registered health professional is something that I broadly support.
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Post by VanWoman84 on Jun 8, 2021 12:23:36 GMT
Obviously, I don't have any control over what is potentially a criminal activity (illicit data sharing) by an employee. BUT allowing the data to be shared to the first company leaves the data open to be shared multiple times beyond the first time. That's out of my control, and that's what I object to. The way I see it is damage limitation. Stop the first company, and the chain of further sharing is broken.
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Post by NomadCris on Jun 8, 2021 12:33:05 GMT
Lika mentioned this in the news thread, but it's now a few pages back and it's too important for everybody. There was a GP just on LBC saying it's everything from your records up for grabs, apart from (allegedly) names and addresses. I am trying to opt out, have emailed but haven't as yet had a reply. I've been pondering on this. I'm wondering if financial compensation will be due to individuals when the inevitable data breach occurs. My bias is that the neutralisation of the NHS means I will be paid more fairly. So from a selfish perspective Id prefer an end to the NHS. Private health has not guaranteed better pay for medical staff in the US. Nor has it guaranteed safety of employment, 60 odd hospitals go bankrupt every year its a complicit arm of the capitalistvfinancial services and insurance industry which you are always railing against. And, medical health care bills are the number one cause of bankruptcies in the US. Around 530,000 people a year file for bankruptcy due to medical bills. Im sure if anyone were to file for compensation for unwarranted use of personal data it would be fought vociferously and the respective administration put itself into bankruptcy to avoid paying. You deserve better pay i dont argue with that, but ordinary people dont deserve to lose everything they own if they become seriously ill and medical bills render them bankrupt, so that you can feel better rewarded for your work.
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Post by Deleted on Jun 8, 2021 13:05:51 GMT
I've been pondering on this. I'm wondering if financial compensation will be due to individuals when the inevitable data breach occurs. My bias is that the neutralisation of the NHS means I will be paid more fairly. So from a selfish perspective Id prefer an end to the NHS. Private health has not guaranteed better pay for medical staff in the US. Nor has it guaranteed safety of employment, 60 odd hospitals go bankrupt every year its a complicit arm of the capitalistvfinancial services and insurance industry which you are always railing against. And, medical health care bills are the number one cause of bankruptcies in the US. Around 530,000 people a year file for bankruptcy due to medical bills. Im sure if anyone were to file for compensation for unwarranted use of personal data it would be fought vociferously and the respective administration put itself into bankruptcy to avoid paying. You deserve better pay i dont argue with that, but ordinary people dont deserve to lose everything they own if they become seriously ill and medical bills render them bankrupt, so that you can feel better rewarded for your work. I'm more flexible than many. And have less to lose. Privatisation of healthcare would work very well for me. I didn't build the system and your intended insult cuts deep but I keep telling everyone that it is a job. I get that people are hallucinating happy fairies and unicorns and spewing their self satisfied pleasure all over the place. I didn't sign up to be a charity worker. Its a job and I want pay that allows me to live. I'm sorry that people think it's OK to settle for hard work and scant reward but that's their miscalculation and mistake. I want fair reward. I don't have kids to settle and can travel to where the work is and quite frankly I'm kinda sick of responsibly child free people criticising me for me being realistic. My problem is that the NHS suppresses nurse wages. My accusation is that this wage suppression is primarily a gender war. I'm trying to live a life not a charity. Competition for my material needs is fierce and expensive. I'm not looking for sympathy which is why I have to be a cunt!
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Post by VanWoman84 on Jun 8, 2021 13:17:59 GMT
This is getting way off topic, so why not start a thread of your own in a members section of the forum @zendaze? I will say just one thing, why not look for a job in the private sector? One that will be better compensated? Anyway I have opted out of the NHS data sharing, as I think that whatever information I gave to the NHS was for my good, not the good of whatever private company might buy it. I don't believe for a minute the data will be used exclusively for medical research. It will be sold on multiple times, at no financial benefit to me. I'm not even getting anything for free in return. The NHS may be free at the point of use, but it's not without cost.
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Post by Deleted on Jun 8, 2021 13:24:21 GMT
This is getting way off topic, so why not start a thread of your own in a members section of the forum @zendaze? I will say just one thing, why not look for a job in the private sector? One that will be better compensated? Anyway I have opted out of the NHS data sharing, as I think that whatever information I gave to the NHS was for my good, not the good of whatever private company might buy it. I don't believe for a minute the data will be used exclusively for medical research. It will be sold on multiple times, at no financial benefit to me. I'm not even getting anything for free in return. The NHS may be free at the point of use, but it's not without cost. What was the topic? It's a all relative and unless you are going to accuse me of academic discussion highly relevant. Are you certain it's off topic? Would you not be getting way heavy with your own bias here? Cost effective outcomes for the NHS and its supporters require analysis of statistics. If you want the NHS then you have to find a way for this analysis to happen.
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